A bestselling author uses his platform to tell the story of a curable disease that kills over a million people a year.
In a postscript that is essentially a sweet apologia, Green explains, “If you’d told me when The Fault in Our Stars was published that a decade later, I’d be writing and thinking almost exclusively about tuberculosis, I would have responded, ‘Is that still a thing?’” Many readers likely remain under the same illusion. But after Green met a very sick boy named Henry Reider on a trip to Sierra Leone in 2019, he decided to apply himself to the task of learning and sharing every single thing there is to know about tuberculosis, ultimately understanding that the disease still exists due to racism, greed, and the brutal economics of public health, concluding in part that “TB is both a form and expression of injustice.” He parcels out the frightening story of what happened to Henry bit by bit through chapters that also recount the long, strange history of the disease. Once known as consumption and romanticized through association with artists and writers who died of it, for centuries TB was treated with a variety of utterly ineffective approaches in sanatoriums and elsewhere. A young American woman who had been confined in one such institution since the age of 3 was treated with some of the first doses of streptomycin when it became available in the 1940s—and emerged back into the world of the living at 16. Along with interesting accounts of historical figures and current patients, Green explores the financial aspects of treatment and the practices of the pharmaceutical industry, bringing home the shameful truth of the situation. In all, his “curious megaphone”—his phrase for the access he has to a wide audience due to his literary stardom—has been put to good use.
This highly readable call to action could not be more timely.