A disability advocate debuts with a collection offering potent rejoinders to ableism.
Tracing memories from childhood to the present, Taussig, who has a doctorate in disability studies, explores her life story and relationship with her body as well as attendant concerns of confidence, belief, and hope. Even though she grew up “after the passage of the 1990 Americans With Disabilities Act,” the author, who was paralyzed at age 3 following a lengthy, deleterious cancer-treatment regimen, faced many difficult situations related to her disability, from confronting lowered expectations at a youth camp to navigating awkward moments with friends and acquaintances. She investigates what accessibility really means and how it relates to housing, employment, and health care—“The older I got,” she writes, “the more I cringed at the bills my body created”—and she looks at dating challenges and the difference between finding marriage and finding love, exposing many of the mechanics behind traditional social scripts. Constantly questioning the damaging illogic of nonaccessible public spaces, Taussig confronts the insidious nature of “stigma, isolation, erasure, misunderstanding, skepticism, and ubiquitous inaccessibility.” Introducing many key themes of disability studies throughout the narrative, the author pushes for nuanced awareness and understanding of fluid rather than fixed needs, essential for a more effective intersectional approach to social solutions. Taussig goes beyond empty inspirational jargon, forcing readers to consider the value of the real-world improvements that can emerge from centering underrepresented voices. An engaging, up-close view of the need for structural change regarding disabilities in this country, the text is a solid combination of theory and personal experience. “We should bring disabled perspectives to the center,” she writes, “because such perspectives create a world that is more imaginative, more flexible, more sustainable, more dynamic and vibrant for everyone who lives in a body.”
A fierce and fabulous revision to entrenched ableist scripts.